Saturday, March 3, 2012

Just existing and watching time go by.

Thank you for all the kind comments left on my blog. Sorry that I haven't written or updated in quite some time, I know how frustrating that can be when you've invested time in checking for updates. I've fallen into a bit of a depressing routine as of late. I wake up, check my SSD status, take my meds, eat something, fiddle around on the computer until it hurts too much and then nap until dinner or until Steven gets home at 1 a.m.
I know it's because I'm depressed. I know it's because I'm in constant pain and I don't know what to do about it. I do have hope. I have a new doctor in Syracuse who seems to be a bit better and more responsive than the dipshit I saw in the hospital. She does have some doubts on me taking cellcept though. She said if I ever plan on having children (which is something I can't even fathom at the moment) we will have to consider an alternative treatment. She has agreed to continue the rituximab treatments or at least until she can talk me into taking tysabri. I don't care which drug so long as I'm not the one doing the injecting.
I do have to have another treatment of solumedrol because she thinks my face and bladder issues are due to some inflammation. If that's the case, if it's a home infusion at least I can watch TV or something while they do it.
I also started therapy. No, not physical therapy. Therapy of the mind, folks. That's right, the hospital determined I'm a wee bit crazy and that I need psychological help. But can you blame me? Look at everything I've been through!
That's all that I have to say because my life has become boring and mundane and sometimes stressful.