tag:blogger.com,1999:blog-71736804932455613.post7216610296353194643..comments2020-07-14T16:53:47.170-07:00Comments on Living With MS and PCOs: I wish I could just understand.Desireehttp://www.blogger.com/profile/02289644962031048817noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-71736804932455613.post-69429164361254821722011-01-27T15:47:44.971-08:002011-01-27T15:47:44.971-08:00Check them out Des! Also check with MS Associatio...Check them out Des! Also check with MS Association (or whatever there is) to find out about researchers in your area. I have friends who helped find the marker for MD because sadly, both their girls were born with it (unusual to have 2 kids-esp. girls- with it) Didn't really help their conditions much, but if my friend had lived (don't ask) they would have been able to test a fetus for MD.Debbynoreply@blogger.comtag:blogger.com,1999:blog-71736804932455613.post-37795228169719355692011-01-26T21:08:46.862-08:002011-01-26T21:08:46.862-08:00You know, I've heard there's a college aro...You know, I've heard there's a college around here OHSU, that would probably love to get their hands on me. It's worth a check-in and see if I can find some sort of specialist.Desireehttps://www.blogger.com/profile/02289644962031048817noreply@blogger.comtag:blogger.com,1999:blog-71736804932455613.post-83189805870185982602011-01-26T21:03:49.436-08:002011-01-26T21:03:49.436-08:00It is so strange how everything, unrelated, actual...It is so strange how everything, unrelated, actually is. All of my googling and research tells me that the complete opposite should happen when I take prednisone, that I should therefore lack a menstrual cycle. But then again, I never had one to begin with so wouldn't it make more sense if it just didn't happen at all? But it does, and it's like clockwork. By the second day of the oral drugs it's there, giving me a menancing growl and reminding me, oh yeah, I have boobs and a vag. As if, menstruation alone, makes you feel like a woman.Desireehttps://www.blogger.com/profile/02289644962031048817noreply@blogger.comtag:blogger.com,1999:blog-71736804932455613.post-75137014704072004902011-01-26T17:06:51.508-08:002011-01-26T17:06:51.508-08:00OK, totally non medical person here, but I'd s...OK, totally non medical person here, but I'd still wonder WTF was going on too. It doesn't seem "right" that Prednisone brings menstruation. I really hope you find a doc who has more curiosity and time to research some of this. And a huge BOO HISS to the doc who seemed to want to blame your size. You are right, there IS a prejudice-especially at first meeting. Is there a college about? Mayhaps one with a Med school? Seems you might need people like that on the "case". Since I quit smoking, my entire endocrine system went wacky, so I'm sort of curious myself about how it all interconnects.Debbynoreply@blogger.com