Saturday, March 3, 2012

Just existing and watching time go by.

Thank you for all the kind comments left on my blog. Sorry that I haven't written or updated in quite some time, I know how frustrating that can be when you've invested time in checking for updates. I've fallen into a bit of a depressing routine as of late. I wake up, check my SSD status, take my meds, eat something, fiddle around on the computer until it hurts too much and then nap until dinner or until Steven gets home at 1 a.m.
I know it's because I'm depressed. I know it's because I'm in constant pain and I don't know what to do about it. I do have hope. I have a new doctor in Syracuse who seems to be a bit better and more responsive than the dipshit I saw in the hospital. She does have some doubts on me taking cellcept though. She said if I ever plan on having children (which is something I can't even fathom at the moment) we will have to consider an alternative treatment. She has agreed to continue the rituximab treatments or at least until she can talk me into taking tysabri. I don't care which drug so long as I'm not the one doing the injecting.
I do have to have another treatment of solumedrol because she thinks my face and bladder issues are due to some inflammation. If that's the case, if it's a home infusion at least I can watch TV or something while they do it.
I also started therapy. No, not physical therapy. Therapy of the mind, folks. That's right, the hospital determined I'm a wee bit crazy and that I need psychological help. But can you blame me? Look at everything I've been through!
That's all that I have to say because my life has become boring and mundane and sometimes stressful.


  1. *hugs* I love you darlin! I hope this new doc helps more than that other moron at the hospital!! I think therapy isn't a bad thing, gives you an outlet to a an outside non judgmental person which you don't really get at home. *squeezes and loves* <3 jennish

  2. Awww Des. Big hugs from me too. Therapy could be the best thing ever. I don't know how you haven't run in the streets naked as a jay bird squawking "eat more lemon pies" with all you've been through! I am hopeful that this doctor will be the right fit for you. Just remember, be honest with her and you have every right to expect the same FROM her. You have always amazed me with the maturity with which you face your troubles, and I am still inspired by you. Keep your chin up sweetie, hopefully better days are coming.
    >.< Jen' Mom :)

  3. I understand. It can get overwhelming. I predict a brighter time.

  4. If you're stil having nerve pain jave you tried Neurontin for it? It may help. My doctor has me taking it in conjunction with my baclofen for muscle spasm pain. Just a suggestion from aa drop-in first time reader who knows yoou might not even get this comment on a post written so long ago. Unless, that is, you have your comments go in to your e-mail box like I do. :-)